Don't be fooled by google ads. This is the original and only true source of information about the KDQOL

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KDQOL^{™
(Don't be Fooled by Google Ads - this is the Real KDQOL)}

This is the original and only true source of information about administration, scoring, and use of the Kidney Disease Quality of Life Instrument.

Due to unauthorized use of the KDQOL by the
Medical Education Institute,
access to KDQOL resources is now only available at:

http://www.rand.org/health/surveys_tools/kdqol.html

The long form of the KDQOL™ (134 items) was developed in 1994 by the Kidney Disease Quality of Life Working Group with support from Amgen. After release of the KDQOL™ Long Form, the group began work on KDQOL™ short forms. This site includes information on the KDQOL™-SF 1.3 and the KDQOL™-36 short forms.

Open letter to Nephrology Nursing Journal Editor, Beth Ulrich

Beth Ulrich, EdD, RN, FACHE, FAAN, Editor, Nephrology Nursing Journal: The Danquah et al. review paper on quality of life measures for patients on hemodialysis (2010, vol. 37 #3) cites Bakewell et al. (2001) as the source for the Kidney Disease Quality of Life Short-Form (KDQOL-SF). The attached article (published in 1994) is the actual source of the KDQOL instrument. In addition, our website includes extensive information about the KDOQL-SF: http://gim.med.ucla.edu/kdqol/ I am surprised that this lack of attention to detail slipped through the Nephrology Nursing Journal peer review and editoral process. For a higher quality review paper, please see: Edgell, E. T., Coons, S. J., Carter, W. B., Kallich, J. D., Mapes, D., Damush, T. M., & Hays, R. D. (1996). A review of health-related quality of life assessment in end-stage renal disease. Clinical Therapeutics, 18(5), 887-938.

Dr. Hays recently gave a presentation on Patient Reported Outcomes in Nephrology - here is a link to it from his personal web site:

Hays, Ron D. Patient-Reported Outcome Measures in Nephrology. Harbor-UCLA Division of Nephrology and Hypertension - Nephrology Grand Rounds. Torrance, CA: November 28, 2011.

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For other sources of information about the KDQOL™, please see:

ProQolid at http://www.qolid.org/instruments/kidney_disease_quality_of_life_instrument_kdqol_sup_font_size_1_tm_font_sup

PromotingExcellence.org at http://www.promotingexcellence.org/resources/renal.html

The Renal Network, Inc at http://www.therenalnetwork.org/services/kdqol.php

Life Options at http://www.lifeoptions.org

This site was last updated on August 20, 2012.